My name is Kathy, I am married to Ian. I am a mum to Jack, 17, and Lucy, 13.
Jack and Lucy have a rare genetic syndrome called Smith Lemli Opitz syndrome.
I’ve called this blog ‘Landed With Life’ because Jack and Lucy view the world through different eyes, and sometimes I think they can teach us far more than we can teach them.
This blog is about our daily lives – the fantastic highs, the challenging lows, and everything inbetween.
I hope you will find it interesting and that it will help raise awareness of SLOS and what it means to be a carer.